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This organization is dedicated to the support of GIST patients, families, and friends and the ongoing research required to treat and cure Gastrointestinal Stromal Tumors.

On this site you will find people from around the world who are dealing with GIST, both the experienced and inexperienced, patients and caregivers, nonprofessionals and professionals. Here you will find support, contacts and information for managing life with GIST Cancer.

Join the list and meet everyone : )

New resources and updates

JUST RELEASED!!!!

Pfizer has posted a press release announcing that the FDA has approved Sutent for GIST and for renal cell cancer.

That means that doctors can now begin prescribing it and that patients in the U.S. will be able to access it outside of a clinical trial.

Click here for further information

Pfizer has a patient assistant program for Sutent. The program is for people who do not have insurance or who may not have enough insurance to cover Sutent.

Click here for a PDF file

At the ASCO Gastrointestinal Cancer Symposium held in late January, 2006, Dr. Charles Blanke presented a poster detailing 4-year follow-up results of the patients in the first randomized Phase II clinical trial of Gleevec for treatment of GIST, known as the B2222 trial.

Click here to learn more about this.

We are pleased to announce six new documents in a section titled "About GIST". These include: What is GIST, Diagnosis and Pathology, Special GISTs (familial, NF1, pediatric, Carney triad), Prognosis, References, and Glossary.

Click here to access

Infinity Initiates Phase I Clinical Trial of IPI-504 for Patients with Gastrointestinal Stromal Tumors (GIST)

Help Novartis Oncology collect information from doctors on the diagnosis and management of GIST via doctor participation in a GIST Registry.

A copy of a brochure about the GIST Registry is available for you to print and then bring to your docter by clicking here.

Clinical trial fact sheet – Sunitinib malate (SU11248) prolongs progression-free and overall survival for GIST patients after failure of imatinib mesylate therapy:update of a phase III trial (Demetri)

To be presented on Thursday 3 November, 10:00–10:15 Room 252AB Oral presentation session: GI – GIST

Facing grief and loss

We have set up a mailing list for those who need help or assistance with the many issues related to grief and loss. Click here for information on how to join, and for resources that might be helpful.

GSI Forums/Message Board

GSI Forums/ Message Board now live. Click here to access this new resource.

Phone Pals is now live!

Need to talk with a real person? Make contact with other patients and caregivers. Call our Phone Pals number at 215-340-9374 and leave a message. Someone from our volunteer network will call you!

"Voices of GIST"

THE GIST PSYCHO-ONCOLOGY PAGE ( a.k.a. PSI-ONC pronounced Sigh-Onk) by Melvin S. Heller, M.D.

Consensus meeting for the management of gastrointestinal stromal tumors: report of the GIST Consensus Conference of 20-21 March 2004, under the auspices of ESMO Consensus summary on GIST treatment by an international group of GIST experts.

Please check out the extensive additions under News and Resources!

Photo Gallery now online! Click here

We subscribe to the HONcode principles. Verify here.
We subscribe to the HONcode principles of the HON Foundation. Click to verify.

"Most of us are patients and caregivers, not trained medical professionals. Any information or opinions that are set forth on this website should not be interpreted as medical advice, and none of that information is a substitute for consultation with your own doctor. Use all such information at your own risk. For medical, legal or other advice, please consult with appropriate, qualified professionals. We make every effort to achieve accuracy with respect to information included on this website, but we are human and errors occur. Please advise the Site Coordinator of any errors as quickly as possible by clicking the "Contact Us" tab above and following the instructions on the screen."

Please click here to review our full Disclaimer.

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This page last modified Sunday, March 05, 2006

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