• Florida GIST Patients Converge On Orlando

    Imagine a group of survivors from a quick-sinking cruise ship swimming through shark-infested water for two miles before, one by one, they reach a small and deserted island. Much like the cast of the TV series “Lost”, these intrepid swimmers congratulate each other for ‘making it’ to land, then begin to figure out how they […]

    Continue reading
  • Marina attends patient summit for GSI

    Marina Symcox, PhD represented GIST Support International at the Novartis Patient Summit held June 29 – July 1, 2007 near Frankfurt, Germany. The theme of this year’s meeting was "New Horizons in Treating Cancer." About 35 delegates representing GIST patient organizations from around the world (plus additional delegates representing CML patient groups) attended the meeting. […]

    Continue reading
  • GISTers meet in NYC

    GISTers Meet in New York CityMichael Ting organized an informal lunch meeting of GISTers in the New York City area on Augist 11, 2007. Michael said "We had a nice showing for the NYC GISTers meeting this past Saturday. Thanks to everyone for taking the time to participate. In addition to getting to know one […]

    Continue reading
  • Demetri, Schaye Ride Pan Mass

    Dr. George Demetri, leading clinical GIST researcher, participated as a rider in Dana Farber’s classic fundraiser, "The Pan Mass Challenge" (August 4-5, 2007). Pan Mass is a two-day 190+ mile cycling event in the hills of Massachusetts. Paul Schaye, an "ironman" who is a GIST patient treated by Dr. Demetri, challenged Demetri to make the […]

    Continue reading
  • GIST featured at MDA

    The August 2007 MD Anderson newsletter CancerWise features two articles about gastrointestinal stromal tumor: Persistence Paves Way for GIST Recovery: the story of GISTer Ginger Sawyer, the treasurer for GIST Support International. Q&A: Targeted Gleevec Therapy for GIST: an interiew with GIST expert Jonathan Trent, MD Dr. Trent describes current treatment strategies at MD Anderson, […]

    Continue reading
  • World Congress on Gastrointestinal Cancer

    Full Text at: http://www.worldgicancer.com/WCGI/webcast04/ses7.html  

    Continue reading
  • Predicting Side Effects

    Many patients worry about potential side effects before beginning to take imatinib (Gleevec). Martine van Glabbeke and coauthors published a paper with a math model to predict the probability of developing various side effects based on the patient’s condition prior to taking the drug. Dr. van Glabbeke has written a calculation routine for side effect […]

    Continue reading
  • GSI Signs Bad Nauheim Declaration

    GSI Endorses Bad Nauheim Declaration for GIST Patients’ Right to Access Treatment Representatives from twenty three GIST patient advocacy organizations worldwide gathered in conference June 29 -July 1, 2007 in Bad Nauheim, Germany. They drafted and signed an international declaration to promote the access to state-of-the-art GIST treatment and care for all GIST patients, wherever […]

    Continue reading
  • GSI Reps Attend ASCO

    Sherri Janousky and Carolyn Grobe are attending the American Society for Clinical Oncology meeting June 1-5, 2007 in Chicago. Both residents of the greater Chicago area, they are braving long train rides, sore feet, and heavy loads of handouts to get the GIST treatment news and research being presented at the huge meeting. Pictured here […]

    Continue reading
  • Do Not Interrupt Gleevec

    A French trial investigating the results of interrupting Gleevec in metastatic GIST patients has been published (click for abstract).  Results indicate imatinib treatment should not be interrupted to avoid reactivation of metastases.

    Continue reading