Most of us are patients and caregivers, not trained medical professionals. Any information or opinions that are set forth on this website should not be interpreted as medical advice, and none of that information is a substitute for consultation with your own doctor. Use all such information at your own risk. For medical, legal or other advice, please consult with appropriate, qualified professionals. We make every effort to achieve accuracy with respect to information included on this website, but we are human and errors occur. Please advise the Site Coordinator of any errors as quickly as possible by clicking the “Contact Us” tab above and following the instructions on the screen.

User Agreement

Please read the following terms and conditions carefully before using this website or any of the resources and services provided by the GIST Support International (“GSI”). Your use of the GSI website or any GSI resources or services constitutes your agreement to the following terms and conditions. GSI reserves its right to terminate access to our membership resources at any time if we determine that a user has violated the terms of this Agreement.

This Agreement is subject to change at any time and may be modified by GSI without notice. You will be bound by any modifications to this Agreement. Please check regularly for modifications.

Privacy Policy

Open Membership; No Screening of Participants in Exchanges on List Server. GSI maintains an open membership policy, which means that anyone can register and participate in the exchanges that occur through email messages distributed by our mailing list. We request that our members respect the privacy of other members with regard to information included in email messages distributed through our mailing list. We are unable, however, to control or predict exactly what other members do with information they receive electronically, and some may divulge the information you share – including but not limited to your name, email address and other identifying information – to unrelated third parties.

Free Access to Website. In accordance with our open membership policy, all information on our website is freely available to anyone with access to the internet. Please keep this in mind in considering whether to volunteer to have any information you provide displayed on our website.

Minimal Data Collection. We do not collect contact or other information from our members, other than members’ first and last names and their email addresses. We do not sell or otherwise release this information to third parties. We do not distribute information that identifies a particular member to anyone outside of the group without first obtaining that member’s permission. We cannot assure you, however, that if you provide your name and email address to us in the process of applying to become a member of GSI, this information will never be disclosed without your permission.

No Data Security. No internet transmission is ever 100% secure or error-free and, as noted above, it is possible that members may not respect each others’ privacy with regard to information conveyed in postings on our list server. You should take special care in deciding what information you choose to disclose in emails posted on our list server or volunteer to have reproduced on our website.


Medical Disclaimer. Most of us are patients and caregivers, not trained medical professionals. Therefore, please understand that your use of any information GSI shares on this website, or otherwise, is at your own risk. All of the information we make available on our website, or otherwise, is intended to provide you with general information for educational purposes only and is not a substitute for consultation with your doctor. Any information GSI shares with you is not intended to constitute, and should not be interpreted as, medical advice. We hope that you will be able to use the information we provide to have more informed discussions with trained medical professionals. We encourage you to discuss any and all of the information we provide with your doctor.

Disclaimer of Warranty: Every effort to achieve accuracy is made, but we are human and errors occur. Therefore, we cannot guarantee the accuracy or completeness of the information posted on our website. Specifically, we make no warranties as to accuracy, completeness, currency, reliability, merchantability or fitness for a particular purpose. Please advise us of any errors as quickly as possible to assist us in furthering our goal of providing useful and up-to-date information to our members. You can do so by contacting the Site Coordinator – click on the “Contact Us” tab on the top of each page on the website and follow the instructions on the screen.

Operation of any website always involves the risk that it may be infected by viruses, defaced, or otherwise altered by computer programs however,every effort to avoid this is undertaken by our hosting service.

We provide links/access to other websites for your convenience. We are not responsible for the availability, accuracy, or content of those outside sites, nor do we endorse them. Furthermore, any information you share on such websites is not subject to the terms and conditions contained in this Agreement.

Limitation of Liability

You agree that you will hold GSI and its officers, directors, agents, employees or volunteers harmless from all claims arising out of, or related to, your use of any information that GSI shares with you. You also agree to hold GSI and its officers, directors, agents, employees and volunteers harmless from all claims arising out of, or related to, your access or use of, or your inability to access or use, this website, the information contained on this website, or other websites to which it is linked.

Hosting is hosted on servers owned by Our mailing list is sponsored by L-soft. We do not accept advertising or banner ads on our website. GSI, GIST Support International, and logos used on this site are Copyright and may not be used without the express written permission of GIST Support International. The GSI logo is a Service mark of GIST Support International.