Best Links

This page shows links to particularly useful organizations and websites.

The Max Foundation

The Max Foundation (TMF) is a US-based non-profit cancer organization with international focus.  TMF is dedicated to helping patients with blood-related cancers and other rare cancers worldwide by facilitating access to treatment and providing care and support for those who have limited access to resources.

The Glivec International Patient Assistance Program (GIPAP) is a program of Novartis Pharma AG. The Max Foundation is a partner in the administration of GIPAP. As part of our Patient Services, patients who are screened, approved, and referred by TMF for a donation of Glivec through GIPAP may also benefit from access to the following TMF services:
     locally-based, culturally competent care and support specialist
     patient support groups
     informational, emotional, and practical support
     help navigating their health care system

Patient Advocate Foundation

1-800-532-5274
Patient Advocate Foundation is a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability.

Sutent.com

This Pfizer website provides information about use of Sutent for GIST.

First Resource

1-877-744-5675, then choose option 1
Sponsored by Pfizer, FirstRESOURCE assists patients in obtaining access to Sutent through guidance in obtaining insurance reimbursement, appealing denied insurance claims, and financial assistance for eligible patients.

Gleevec.com

This Novartis website provides information about use of Gleevec for GIST.  Financial assistance for Gleevec is handled through the MAX Foundation (see link at top of this page).   The Novartis Oncology Reimbursement Hotline (1-800-282-7630)  will be able to provide assistance with the reimbursement process for Novartis products.

Emerging Med

The free Clinical Trial Matching Service is made available to GIST Support International (GSI) members and visitors through a collaboration with EmergingMed. This service is designed to be a simple, confidential way to obtain information about clinical trials pertaining to Gastrointestinal Stromal Tumors.

Clinical Trials Page

This is GSI's page about clinical trials.

Liddy Shriver Sarcoma Initiative

The Liddy Shriver Sarcoma Initiative undertakes activities that help improve the quality of life for people dealing with sarcoma. Central to this mission are our goals of increasing public awareness of sarcoma and the lack of young adults in cancer-based clinical trials and raising funds for sarcoma-related research.  (See the ESUN electronic newsletter archive on this site for articles about sarcomas.)

Cancer.net

Cancer.net provides oncologist-approved cancer information from the American Society of Clinical Oncology, including monthly Q&A topics.  This site replaced ASCO's previous patient-oriented site "People Living with Cancer."

Lab Tests Online

This site is a guide to medical tests: how and why they are performed, and what the results mean.  It is sponsored by a large number of professional associations as a public service.

American Institute for Cancer Research

The AICR is a nonprofit organization providing scientifically-based, practical information about diet and nutrition and cancer.

More Links

This page of external links we have assembled covers several categories...