GIST Support International
Latest News
NIH Pediatric GIST Clinic

Z9000 Adjuvant Imatinib Trial

Sorafenib Is Promising

Latest Content Updates
GSI Community
GIST Support International: Gastrointestinal Stromal Tumor patient education and support
Monitoring Tests




Committees

Our all-volunteer organization utilizes committees as working groups to achieve our mission. Any subscribers may take it upon themselves to establish and organize a committee that forwards the organization's mission. Final authority to make changes to the organization, its goals, objectives, and guidelines, shall rest in the hands of the Operating Committee.

Operating Committee   gsi@gistsupport.org

Lee Ann Lamb, Co-manager leeann@gistsupport.org
Marina Symcox, Co-manager

marina@gistsupport.org

Ginger Sawyer, Treasurerginger@gistsupport.org  
Joan Marie Hayno, Secretaryjoan@gistsupport.org
Yvonne Blixt

ycb11320@aol.com

William Arringtonbill@gistsupport.org
Bradley Clarkbrad@gistsupport.org
Donna Cappsdonna@gistsupport.org
Robert Spiegelrobert@gistsupport.org
Bill Davis

Greeters

Greeters are members of GSI who have volunteered to write personal welcome letters to those just signing up for our mailing list.

  • Leeann South, Greetings Coordinator
  • Minnie Broas
  • Jeni Bullard
  • Maura Cesarini
  • Vince Luce

Phone Pals

This committee was formed from a need to offer support and information to those primarily without computer access. It is also an outreach for those who would rather speak in person to someone rather than by e-mail. This very large group of volunteers is headed up by Nea Paquet. In order to request a call from a Phone Pal, call 215-340-9374.

Science Committee

The members of the science committee keep an eye on new medical papers pertaining to GIST and watch for new drugs in development that might be used in treating GIST. They summarize the most applicable information on our website, keeping it an up-to-date medical and scientific resource to our GSI community.

  • Julia D. Royster, Ph.D., Science Coordinator julie@gistsupport.org
  • Becky Bensenhaver
  • Anna Costato
  • Anette Duensing, M.D.
  • Penny Duke
  • Carolyn Grobe
  • Mel Heller, M.D.
  • Linda Hughes 
  • Sherri Janousky
  • Rick Lamb
  • Angela Lee, Ph.D.
  • Leslie Norman, M.D.
  • Rebeca Porto, M.D.
  • Marina Symcox, Ph.D.

Website Committee

The website committee is composed of volunteers within our group who work together to make changes and updates to our web site.

  • Butch, Website Coordinator
  • Bill Arrington
  • Paul Cutler
  • Bill Davis
  • Dan Fluet
  • Joan Marie
  • Frank Servich
  • Bob Spiegel

Pediatric Committee

The Pediatric Committee deals with issues faced by young GIST patients:  those who developed GIST before age 18 or in their 20s with the characteristics of pediatric GIST, Carney Triad, or Carney-Stratakis dyad.

  • Phyllis Gay, Pediatric Committee Coordinator



back to top