Pediatric GIST & Carney Triad listserv

We have set up an email list dedicated specifically to gastrointestinal stromal tumor (GIST) in young people.  This includes pediatric GIST (ages 0-18 years), Carney Triad (a syndrome including at least 2 of the following: GIST, paraganglioma, and pulmonary chondroma), and GIST in young adults (less than age 30) without the mutations that cause GIST in most older adults.

To join this list please click here.

Young patients, parents, caregivers, and interested others are welcome to join!  Our aim is to provide support and exchange useful information about pediatric/Carney Triad GIST and its treatment