Pediatric GIST & Carney Triad listserv

We have set up an email list dedicated specifically to gastrointestinal stromal tumor (GIST) that develops in young people.  This includes pediatric GIST (ages 0-18 years), Carney Triad (a syndrome including at least 2 of the following: GIST, paraganglioma, and pulmonary chondroma), and GIST in young adults (diagnosed by age 30) without the mutations that cause GIST in most older adults.

To join this list please click here.

Young patients, parents, caregivers, and interested others are welcome to join!  Our aim is to provide patients support and a place to talk and exchange useful information about pediatric and Carney Triad GIST and its treatment.  Many of our list members are now older than age 30, but this list is "theirs" too because they developed the disease at a young age.