Wildtype GIST listserv
We have set up an email listserv dedicated specifically to wildtype gastrointestinal stromal tumor (GIST) in patients of any age, plus their family and friends. Wildtype GIST means GIST without muations in the genes for KIT or PDGFRA. Almost all GIST in patients younger than age 21 is wildtype, as well as a large percent of GIST in patients younger than 40, and about 10% of GIST in older adults. Subtypes of wildtype GIST include Carney Triad and Carney-Stratakis Dyad.
To join this list please click here.
Patients, family members, caregivers, riends, and interested others are welcome to join! Our aim is to provide patients support and a place to talk and exchange useful information about wildtype GIST and its treatment.