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LINKS
This page includes the following categories of links (click a category to skip down the page):
GIST Patient Organizations
GIST Fundraising Organizations
Sarcoma Links
Cancer Links
Specific Problem Links
Assistance Links
Professional Organizations
Hospice and End-of-Life Care
Government Educational Websites
Clinical Trials Links
Nutrition and Supplements Links
For links specifically related to adolescents and young people with cancer, see Links for Young Patients.
GIST Patient Organizations
| Contact Groep GIST | Dutch Group |
| Das Lebenshaus | German group |
| Ensemble contre le GIST | French group |
| GIST Support UK | United Kingdom group |
| GIST Uruguayla e-mail to gisturuguayla@gmail.com | Uruguayan group |
| Global GIST Network | network of GIST groups |
| Gastrointestinalis Stroma Tumor | Hungarian GIST Group |
| Japanese Exchange for GIST Patients | Japanese Group |
| Japanese Study Group on GIST | Japanese Group |
| L’Associazione Italiana GIST, A.I.G | Italian Group |
| Liferaft Group | US Group |
| Polish GIST Society | Polish group |
| GIST Selbsthilfegruppe Schweiz | Swiss group |
GIST Fundraising Organizations
| GIST Cancer Awareness Foundation | |
Sarcoma Links
| Liddy Shriver Sarcoma Initiative | |
| Sarcoma Foundation of America | |
| Sarcoma UK | |
| Sarcoma Alliance | |
Cancer Links
| American Cancer Society | |
| CancerCare | |
| Cancer Education | |
| Cancer Guide (Steve Dunn's site) | |
| Cancer Information Network | |
| Cancer.net (from American Society of Clinical Oncology) | |
| CancerTrack | |
| Cancervive, Inc. | |
| Care Pages | |
| Caring Bridge | |
| Coping | |
| Family Care Research Program | |
| Guide to Internet Resources for Cancer | |
| OncoLink | |
Specific Problem Links
Assistance Links
Drug Cost Assistance
| ACCC Reimbursement Hotlines | |
| Chronic Disease Fund | |
| Co-Pay Relief Program via Patient Advocate Foundation | |
| Glivec International Patient Assistance Program (GIPAP) through The MAX Foundation |
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Novartis Oncology The Reimbursement Hotline (1-800-282-7630) will be able to provide assistance with the reimbursement process for Novartis products. |
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| Novartis Patient Assistance Program (PAP) 1-800-282-7630 | |
| Partnership for Prescription Assistance 1-888-477-2669 | |
| Patient Access Network Foundation | |
| Patient Assistance Now 1-800-245-5356 | |
| Patient Services, Inc. | |
| Pfizer FirstResource (for Sutent) and Sutent Patient Call Center 1-877-578-8368 | |
| HealthWell Foundation (for anemia/neutropenia dugs) | |
| Needy Meds | |
| REACH program for Nexavar | |
| RxAssist | |
| Together Rx Access 1-800-444-4106 |
Government Social Services
| Medicaid | |
| Medicare | |
| Social Security Disability | |
Medical Transportation and Treatment Lodging Assistance
| Angel Flights for Cancer | |
| Joe's House | |
| Hope Lodge | |
| LifeLine Pilots | |
| National Association of Hospital Hospitality Houses | |
| National Patient Travel Center |
General Assistance
| Benefits CheckUp | |
| Consumer Guide to Getting and Keeping Health Insurance | |
| Patient Access Network Foundation | |
| Patient Advocate Foundation |
Professional Organizations
Hospice and End-of-Life Care
| Medline Plus: Hospice Care | |
| National Cancer Institute: Hospice | |
| The National Hospice and Palliative Care Organization | |
| Hospice Foundation of America | |
| HospiceDirectory | |
| National Association for Home Care and Hospice | |
| list of Hospice organizations for hospice care | |
| Caring Connections | |
| Hospice Information and Resource Guide from Health Care Library | |
| "Living with Grief: When Illness is Prolonged" Kenneth Doka (editor) | |
| "Living with Grief: Children, Adolescents, and Loss" Kenneth Doka (editor) | |
| "How We die: Reflections on Life's Final Chapter" by Sherwin Nuland |
Government Educational Websites
Clinical Trials Links
Nutrition and Supplements Links
| Office of Dietary Supplements, National Institutes of Health (fact sheets on supplements) | |
| American Institute for Cancer Research (nutrition & cancer) | |
| Medline Plus page on Herbs and Supplements | |
| Memorial Sloan-Kettering page on Herbs and Botanicals |
