GIST Support International
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NIH Pediatric GIST Clinic

Z9000 Adjuvant Imatinib Trial

Sorafenib Is Promising

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GIST Support International: Gastrointestinal Stromal Tumor patient education and support
Monitoring Tests




Links

LINKS

This page includes the following categories of links (click a category to skip down the page):

GIST Patient Organizations
GIST Fundraising Organizations
Sarcoma Links
Cancer Links
Specific Problem Links
Assistance Links
Professional Organizations
Hospice and End-of-Life Care
Government Educational Websites
Clinical Trials Links

For links specifically related to adolescents and young people with cancer, see Links for Young Patients.


GIST Patient Organizations

Contact Groep GISTDutch Group
Das LebenshausGerman group
Ensemble contre le GIST French group
GIST Support UK United Kingdom group
Global GIST Networknetwork of GIST groups
Gastrointestinalis Stroma TumorHungarian GIST Group
Japanese Exchange for GIST PatientsJapanese Group
Japanese Study Group on GISTJapanese Group
L’Associazione Italiana GIST, A.I.GItalian Group
Liferaft GroupUS Group
Polish GIST SocietyPolish group
GIST Selbsthilfegruppe SchweizSwiss group



GIST Fundraising Organizations

GIST Cancer Research Fund


Sarcoma Links

Liddy Shriver Sarcoma Initiative
Sarcoma.net
Sarcoma Foundation of America
Sarcoma UK
Sarcoma Alliance


Cancer Links

American Cancer Society
CancerCare
Cancer Education
Cancer Guide (Steve Dunn's site)
Cancer Information Network
Cancer.net (from American Society of Clinical Oncology)
CancerTrack
Cancervive, Inc.
Care Pages
Caring Bridge
Coping
Family Care Research Program
Guide to Internet Resources for Cancer
OncoLink


Specific Problem Links

American Chronic Pain Association
Cancer-Pain
Drug3k Online Drug  Encyclopedia
International Adhesions Society
Pain.com
Short Bowel Syndrome
United Ostomy Association


Assistance Links

Drug Cost Assistance

ACCC Reimbursement Hotlines
Co-Pay Relief Program via Patient Advocate Foundation
Glivec International Patient Assistance Program (GIPAP)
through The MAX Foundation

Novartis Oncology Reimbursement Hotline (1-800-282-7630)  will be able to provide assistance with the reimbursement process for Novartis products.

Partnership for Prescription Assistance
Patient Services, Inc.
Pfizer FirstResource (for Sutent)
HealthWell Foundation (for anemia/neutropenia dugs)
Needy Meds
RxAssist

Government Social Services

Medicaid
Medicare
Social Security Disability

Medical Transportation and Treatment Lodging Assistance

Angel Flights for Cancer
Corporate Angel Network
Joe's House
LifeLine Pilots
National Association of Hospital Hospitality Houses
National Patient Travel Center

General Assistance

Benefits CheckUp
Consumer Guide to Getting and Keeping Health Insurance
Patient Access Network Foundation
Patient Advocate Foundation


Professional Organizations

American Association for Cancer Research
American College of Surgeons
American College of Surgeons Oncology Group
American Institute for Cancer Research
American Society of Clinical Oncology
Children's Oncology Group
Connective Tissue Oncology Society
European Organization for Treatment and Research for Cancer
European Society for Medical Oncology
National Comprehensive Cancer Network
Society of Surgical Oncology
Southwest Oncology Group

Hospice and End-of-Life Care

Medline Plus:  Hospice Care
National Cancer Institute:  Hospice
The National Hospice and Palliative Care Organization
Hospice Foundation of America
HospiceDirectory
National Association for Home Care and Hospice
"Living with Grief:   When Illness is Prolonged" Kenneth Doka (editor)
"Living with Grief:  Children, Adolescents, and Loss"  Kenneth Doka (editor)
"How We die:  Reflections on Life's Final Chapter" by Sherwin Nuland

Government Educational Websites

National Cancer Institute
MedlinePlus
PubMed
National Library of Medicine
NCBI's Biomedical Book Collection
NIH Genetics Home Reference
Online Mendelian Inheritance in Man
Tumor Microenvironment Network (from National Cancer Institute)

Clinical Trials Links

Coalition of Cancer Cooperative Groups CancerTrialsHelp.org
Cancer411.org clinical trials page
EmergingMed Clinical Trials Matching & Referral Service
IFPMA Clinical Trials Portal
National Cancer Institute Clinical Trials page
National Institutes of Health ClinicalTrials.gov page



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