NIH Clinic for Pediatric and Wildtype GIST

The National Institutes of Health (NIH) and its branch the National Institute of Child Health and Human Development have announced an exciting initiative for those affected by pediatric GIST, Carney Triad, GIST from Carney-Stratakis syndrome, or other wildtype GIST.  Regardless of current age, patients diagnosed with GIST when they were children or young adults are eligible to register and participate, with many expenses paid.  In addition, patients with wildtype GIST (no mutations detected in the genes for KIT or PDGFRA) are now being included.

The next clinic is scheduled for January 22-23, 2009.  Space is limited, so do not delay signing up.  For more information, send an e-mail to ncipediatricgist@mail.nih.gov addressed to Dr. Su Young Kim.

Link to the details in the pages listed below.

Pediatric GIST Clinic Details from NIH:

information provided directly by NIH on how to register for clinics, funding, etc.

News From the First NIH Pediatric GIST Clinic:

Phyllis Gay's report on the June 2008 inaugural clinic

NIH Update: Second Clinic & Website:

news about the 2009 clinic and new NIH website

www.pediatricgist.cancer.gov

Link above to the official website of the NIH Pediatric & Wildtype GIST Clinic