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GIST Support International - NIH Clinic for Wildtype GIST
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NIH Clinic for Pediatric and Wildtype GIST

The National Institutes of Health (NIH), located in Bethesda, Maryland, hosts an annual clinic for wildtype GIST.  The NIH Clinic is a collaborative effort between clinicians, research scientists and advocates who share the goal of helping pediatric and adult Wildtype Gastrointestinal GIST patients. The Clinic is usually scheduled each year during the month of June.  It is never too soon to sign up for the next clinic.  Space is limited, so do not delay signing up. 

The website for the NIH clinic is:

For more information, send an e-mail to

You may also contact the scheduling staffperson as follows:
Melissa Amaya, RN, MSN, OCN
Research Nurse Specialist
Pediatric Oncology Branch
National Cancer Institute
National Institutes of Health
10-CRC, 1-5750 10 Center Drive
Bethesda, Maryland 20892-1106
Phone: (301) 451 9036
FAX: (301) 480 8871

Link to the details in the pages listed below.

Link above to the official website of the NIH Pediatric & Wildtype GIST Clinic

Pediatric GIST Clinic Details from NIH:

information provided directly by NIH on how to register for clinics, funding, etc.

News From the First NIH Pediatric GIST Clinic:

Phyllis Gay's report on the June 2008 inaugural clinic

NIH Update: Second Clinic & Website:

news about the 2009 clinic and new NIH website

News from Second NIH Pediatric & Wildtype GIST Clinic

A summary of changes in the second clinic and plans for a clinical trial

Photos from the NIH clinics

Our photo gallery has a section for NIH clinic photos

NIH Webcasts and Posters on Pediatric & Wildtype GIST

webcasts of lectures from the clinics and posters presented at scientific meetings

News from Third NIH Pediatric & Wildtype GIST Clinic

Adult wildtype GIST patients attend third clinic.

News from Fourth NIH Pediatric & Wildtype GIST Clinic

 Guidelines and weekly Tumor Board plans are under development.

News from the Sixth NIH Pediatric & Wildtype GIST Clinic


News from the Seventh NIH Pediatric & Wildtype GIST Clinic


News from the Eighth NIH Pediatric & Wildtpe GIST Clinic


News from the Ninth Pediatric & Wildtype GIST Clinic (2012)

SDH involvement in wildtype GIST


News from the Tenth Pediatric & Wildtype GIST Clinic (June 2013)



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