NIH Clinic for Pediatric and Wildtype GIST
The National Institutes of Health (NIH), located in Bethesda, Maryland, hosts an annual clinic for wildtype GIST. The NIH Clinic is a collaborative effort between clinicians, research scientists and advocates who share the goal of helping pediatric and adult Wildtype Gastrointestinal GIST patients. The Clinic is usually scheduled each year during the month of June. It is never too soon to sign up for the next clinic. Space is limited, so do not delay signing up.
The website for the NIH clinic is: https://ccr.cancer.gov/gist
For more information, send an e-mail to firstname.lastname@example.org.
You may also contact the scheduling staffperson as follows:
Melissa Amaya, RN, MSN, OCN
Research Nurse Specialist
Pediatric Oncology Branch
National Cancer Institute
National Institutes of Health
10-CRC, 1-5750 10 Center Drive
Bethesda, Maryland 20892-1106
Phone: (301) 451 9036
FAX: (301) 480 8871
Link to the details in the pages listed below.
Link above to the official website of the NIH Pediatric & Wildtype GIST Clinic
information provided directly by NIH on how to register for clinics, funding, etc.
Phyllis Gay's report on the June 2008 inaugural clinic
news about the 2009 clinic and new NIH website
A summary of changes in the second clinic and plans for a clinical trial
Our photo gallery has a section for NIH clinic photos
webcasts of lectures from the clinics and posters presented at scientific meetings
Adult wildtype GIST patients attend third clinic.
Guidelines and weekly Tumor Board plans are under development.
SDH involvement in wildtype GIST