Wildtype GIST listserv
We have set up an email listserv dedicated specifically to wildtype gastrointestinal stromal tumor (GIST) in patients of any age, plus their family and friends. Our Wildtype GIST listserv is for those without mutations in the KIT or PDGFRA genes. This group is recommended for those with other mutations, such as BRAF, NF1, SDH, or those without an identified mutation (unclassified). It is also the listserv relevant for discussions pertaining to Carney Triad and Carney-Stratakis Dyad.
To join this list please click here.
Patients, family members, caregivers, riends, and interested others are welcome to join! Our aim is to provide patients support and a place to talk and exchange useful information about non-KIT/PDGFR mutated GIST and its treatment.