LINKS

This page includes the following categories of links (click a category to skip down the page):

GIST Patient Organizations
GIST Fundraising Organizations
Sarcoma Links
Cancer Links
Specific Problem Links
Assistance Links
Professional Organizations
Hospice and End-of-Life Care
Government Educational Websites
Clinical Trials Links

Nutrition and Supplements Links

For links specifically related to adolescents and young people with cancer, see Links for Young Patients.

GIST Patient Organizations

GIST Alliance for patients-Bulgaria Bulgarian group
Contact Groep GIST Dutch group
Das Lebenshaus German group
Ensemble contre le GIST French group
GIST Support UK  United Kingdom group
GIST Uruguayla e-mail to gisturuguayla@gmail.com Uruguayan group
Global GIST Network network of GIST groups
Gastrointestinalis Stroma Tumor Hungarian GIST Group
Japanese Exchange for GIST Patients Japanese Group
Japanese Study Group on GIST Japanese Group
L’Associazione Italiana GIST, A.I.G Italian Group
Liferaft Group US Group
Polish GIST Society Polish group
GIST Selbsthilfegruppe Schweiz Swiss group

 

GIST Fundraising Organizations

GIST Cancer Awareness Foundation

 

Sarcoma Links

Liddy Shriver Sarcoma Initiative
Sarcoma Foundation of America
Sarcoma UK
Sarcoma Alliance

 

Cancer Links

American Cancer Society
CancerCare
Cancer Education
Cancer Guide (Steve Dunn’s site)
Cancer Information Network
Cancer.net (from American Society of Clinical Oncology)
CancerTrack
Cancervive, Inc.
Care Pages
Caring Bridge
Can’t Stomach Cancer (a site for non-GIST cancer of the stomach)
Coping
Family Care Research Program
Guide to Internet Resources for Cancer
OncoLink

 

Specific Problem Links

American Chronic Pain Association
Cancer Pain
Drugs.com Drug Interactions Checker
Home Health Care Agencies
International Adhesions Society
Pain.com
Short Bowel Syndrome
United Ostomy Association

 

Assistance Links

Drug Cost Assistance

ACCC Reimbursement Guide
Chronic Disease Fund
Co-Pay Relief Program via Patient Advocate Foundation
Glivec International Patient Assistance Program (GIPAP)
through The MAX Foundation
Novartis Oncology  The Reimbursement Hotline (1-800-282-7630)  will be able to provide assistance with the reimbursement process for Novartis products.
Novartis Patient Assistance Program (PAP) 1-800-282-7630
Partnership for Prescription Assistance  1-888-477-2669
Patient Assistance Now  1-800-245-5356
Patient Services, Inc.
Patient resources (for Sutent)
HealthWell Foundation (for anemia/neutropenia dugs)
Needy Meds
REACH program for Nexavar
RxAssist
Together Rx Access  1-800-444-4106

 

Government Social Services

Medicaid
Medicare
Social Security Disability
 Eldercare

 

Medical Transportation and Treatment Lodging Assistance

Angel Flights for Cancer
Corporate Angel Network
Joe’s House
Hope Lodge
LifeLine Pilots
National Association of Hospital Hospitality Houses
National Patient Travel Center

 

General Assistance

Benefits CheckUp
Consumer Guide to Getting and Keeping Health Insurance
Patient Access Network Foundation
Patient Advocate Foundation

 

Professional Organizations

American Association for Cancer Research
American College of Surgeons
American College of Surgeons Oncology Group
American Institute for Cancer Research
American Society of Clinical Onc
ology
Children’s Oncology Group
Connective Tissue Oncology Society
European Organization for Treatment and Research for Cancer
European Society for Medical Oncology
National Comprehensive Cancer Network
Society of Surgical Oncology
Southwest Oncology Group

 

Hospice and End-of-Life Care

Medline Plus:  Hospice Care
National Cancer Institute:  Hospice
The National Hospice and Palliative Care Organization
Hospice Foundation of America
HospiceDirectory
National Association for Home Care and Hospice
List of Hospice organizations for hospice care
Caring Connections
“Living with Grief:   When Illness is Prolonged” Kenneth Doka (editor)
“Living with Grief:  Children, Adolescents, and Loss”  Kenneth Doka (editor)
“How We die:  Reflections on Life’s Final Chapter” by Sherwin Nuland

 

Government Educational Websites

National Cancer Institute
MedlinePlus
PubMed
National Library of Medicine
NCBI’s Biomedical Book Collection
NIH Genetics Home Reference
Online Mendelian Inheritance in Man
Tumor Microenvironment Network (from National Cancer Institute)

 

Clinical Trials Links

CancerTrialsHelp.org
Cancer411.org clinical trials page
EmergingMed Clinical Trials Matching & Referral Service
National Cancer Institute Clinical Trials page
National Institutes of Health ClinicalTrials.gov page

 

Nutrition and Supplements Links

Office of Dietary Supplements, National Institutes of Health (fact sheets on supplements)
American Institute for Cancer Research  (nutrition & cancer)
 Medline Plus page on Herbs and Supplements
Memorial Sloan-Kettering page on Herbs and Botanicals