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Our Stories

    Home > About GIST > SDH-deficient GIST > Our Stories

Our Stories

Here are stories of members affected by pediatric GIST or Carney Triad at a young age.  Read what they have to say about their experiences, feelings, and hopes for the future.

Bryce’s Story

Kara’s Story

Jill’s Story

Katie’s Story

Stacey’s Story

Erin’s Story

 

 

 

 

  • Carney Triad
  • Donating Tissue to Research
  • Links for Young Patients
  • News from the 14th Pediatric and Wildtype GIST Clinic at NIH
  • News from the 15th Pediatric and WT GIST Clinic at NIH
  • News from the 17th Pediatric and Wild Type NIH Clinic
  • NIH Clinic for Wildtype GIST
  • Succinate dehydrogenase deficiency in a PDGFRA mutated GIST
  • Us & Our Docs
  • Wildtype Expert Q&A

 

  • Bryce’s Story
  • Erin’s Story
  • Jill’s Story
  • Kara’s Story
  • Katie’s Story
  • Stacey’s Story

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